Negativity in Pregnancy

Really interesting interview with Tracey Neville, former coach of England’s gold-winning netball team, about negativity in pregnancy. I’m not normally a follower of BBC Sport, but she makes some good points:

Tracey Neville speaking to BBC Sport about negativity in pregnancy

https://www.bbc.co.uk/sport/netball/49751520

Tracey, at 42, comes under the realm of a ‘geriatric’ pregnancy, i.e. ‘older than we’d like you to be’. While she’s not got a high BMI, she’s still subject to the same alarmist ‘high risk’ labelling. From her perspective as a coach, she points out how this negativity is unhelpful:

The thing that I’ve really found around this is the negativity that comes around older women having children… It creates a real fearful environment; they [the doctors] go down the route of “Well, we’re preparing you for the fail.”

I don’t prepare my team for the fail – I prepare them for the win! And if they’re not successful, we then look at other avenues, or other steps we can put in place…

Tracey Neville, former England Netball Team coach

She knows the pain of miscarriage, having suffered two, including one the day after leading England to Commonwealth gold. But, as she is pregnant again, due in March 2020, she highlights the difference she sees in approach:

I’d come out of a miscarriage and another consultant was giving me these stats again.

No, tell me what can I do…

We don’t sit down [with athletes] and quote stats at them, and quote how many times we’ve lost. We sit down and look at how we can win.

If only there was just a bit more positivity around health and wellbeing.

Why is pregnancy not targeted like that, why is it not given that positivity?

Tracey Neville

I probably should mention here that if the surname sounds familiar, it’s because Tracey is part of the Neville sporting family. You may have heard of her brothers Gary and Phil, who were reportedly quite good at kicking a ball around.

But she’s absolutely right – why is it in pregnancy, far more than with anything else, we have to look at the doom and gloom angle? Does negativity in pregnancy serve any useful purpose at all?

My Top 5 Twitter Feeds Of 2019

Social Media is a funny thing. I’ve been on Twitter for years, but I didn’t really ‘get it’ until recently. Maybe it’s since they upped the character limit; I struggled to compress my thoughts into 140 characters! I still often have difficulty with 280, to be honest. But lately, I’m finding Twitter really useful, so I thought I’d share BigBirthas Top 5 Twitter Feeds of 2019.

#1 of Big Birthas Top 5 Twitter Feeds of 2019 = @justsayinmice

If I had to pick just one Twitter feed to tell you about it would be @justsayinmice.

Tweet from @justsayinmice pointing out (yet again) a news article quoting research as if factually correct for humans is based only on mice.
Big Birthas Top 5 Twitter Feeds of 2019

It’s the Twitter feed I didn’t know I needed, until it existed.

If you’ve ever read a long article about a research project which seemed super important and relevant, only to be irritated when a small paragraph near the end mentions it was a rodent study, this is for you.

It’s brilliantly simple. When a report’s title implies a study is about humans, but is actually on mice @justsayinmice retweets saying “IN MICE”. It’s international too; if it’s a Spanish study they write “EN RATONES” etc. instead. Saves a lot of time and frustration. Now I know which studies to ignore, and it’s having a positive impact by encouraging more responsible reporting too!

If you want to read a bit more about how the Twitter account came into being, it’s here: https://medium.com/@jamesheathers/in-mice-explained-77b61b598218. And yes, before you say it, the profile picture is a rat, because that’s funny.

Recommendation #2 – @justsayrisks

Following on from @justsayinmice, @justsayrisks takes on the reports which love to misrepresent statistics. You know the ones – “being obese TRIPLES your risk of [insert undesirable outcome here]”. Often these risks are very tiny, and so the increase in risk is negligible, but sounds really bad.

The author has written more about this here: https://medium.com/swlh/relative-vs-absolute-risk-e80efd68fa5

Human beings are, by and large, terrible at understanding risk. But that’s mostly because no one has ever explained it properly.

Author of @justsayrisks Gid M-K

I’ve only just found this one, but it’s already saved me wasting my time on some clickbait headlines!

@ObesityUK_org

Obesity UK is a relatively new charity (set up in 2014). It doesn’t even have a functioning website at the moment, just a landing page at https://obesityuk.org.uk/. But it is fighting the good fight against obesity stigma, and tweets and retweets are positive, useful, and relevant.

@millihill

Often I’m reading an article about pregnancy or labour, nodding along, only to discover it was written by Milli Hill. She’s a freelance writer penning articles for The Guardian, Telegraph, Independent etc.

Milli is also the founder of the Positive Birth Movement, whose aim I wholeheartedly agree with:

We aim to challenge the epidemic of negativity and fear that surrounds modern birth, and help change birth for the better. 

Positive Birth Movement

Milli is good to follow as she tweets and retweets about all sorts of pregnancy related issues.

@WRISK_project

Lastly I wanted to mention a project Big Birthas is involved with that I’m really excited about.

The WRISK project is interested in the way that risk messages are communicated in pregnancy, particularly to marginalised groups. It’s a collaboration between the British Pregnancy Advisory Service and Cardiff University. The WRISK Twitter feed is great because they’re very quick to notice any relevant news stories and comment on them.

And of course, don’t forget to follow @BigBirthas on Twitter too!

Who do you follow? Feel free to comment and share below!

Help identify the top pregnancy research priorities

RAND Europe is seeking the views of a wide range of people across the UK to help identify the top pregnancy research priorities.

20wk scan pic - Help identify the top pregnancy research priorities

Click here to go to the survey!

This aims to identify the most important questions for future pregnancy research in the UK. It is part of a wider study on pregnancy research funding. You can choose what matters most to you from the suggested research questions.

Who is doing the survey?

It is part of a study being carried out by RAND Europe and was commissioned by the National Institute for Health Research (NIHR) and The Wellcome Trust on behalf of the UK Clinical Research Collaboration (UKCRC).

What’s the study about?

The aims of the study are to review current research funding in the UK and to identify pregnancy research needs, priorities and gaps which should be addressed in the future. The researchers have organised the questions into different areas (e.g. managing conditions such as gestational diabetes, mental health, etc). Every question is optional: if you do not want to give an answer, you can just skip the question.

Why are they seeking so many different people’s views?

The researchers particularly want to hear from women and their partners, from researchers already conducting pregnancy research, and from health care professionals working in maternity services. Collating all these views is important when it comes to defining future priorities; this survey hopes to identify the research questions that are most relevant to and might affect different groups of people.

How long will it take to complete the survey?

If you provide answers to all questions, it should take you about 15 minutes to complete.

Where can I find more information?

Please click here to learn more about this study. If you have any other questions, you can email pregnancy@rand.org.

Thank you for taking the time to add your voice to this survey – there are actually a few research studies looking to hear from women right now – try this one and this one!

Pregnant in the last 5 years? Make your voice heard!

A new, massive survey run by the WRISK Project wants to hear from anyone who is or has been pregnant in the last 5 years. https://www.surveymonkey.co.uk/r/WRISK

We need your voice!

Pregnancy is a time of information and advice overload. But is that information always delivered in the best and most helpful way? Are the messages consistent? Have you ever left a meeting with a health care professional feeling confused, or frustrated, or upset? Our voices and our experiences matter, so please, if you have a few minutes, follow the survey link and tell your story.

It’s great that we’re seeing so many researchers and surveys asking for our perspective lately; it’s the first step to making ourselves heard.

WRISK Recruitment advert - A woman is climbing onto a set of scales - text alongside asks to hear your experiences if you've been pregnant in the last 5 years

To take part, you need to be:

  • Over 16
  • Living in the UK
  • Have been pregnant in the last 5 years (or are currently pregnant)

What The WRISK Project/Survey Hopes To Achieve

This survey hopes to learn more about women’s experiences of advice and information given before and during pregnancy. It’s open to anyone who has been pregnant in the last 5 years, irrespective of how that pregnancy ended.

Women who are planning a pregnancy or who are pregnant receive many public health messages that are intended to guide their decision making. For example, they receive advice about what to eat, drink, how much they should weigh, and what medications they should or shouldn’t take. These messages are intended to improve outcomes for babies and mothers.

However, there is growing concern that messages do not always fully reflect or explain the evidence base underpinning them, and that negotiating the risk landscape can sometimes feel confusing, overwhelming, and disempowering. This may negatively affect women’s experiences of pregnancy and motherhood, and be exacerbated by a wider culture of parenting that tends to blame mothers for all less-than-ideal outcomes in their children.

WRISK Project

The survey is particularly keen to capture the experiences of women whose voices often go unheard; including BAME women, those receiving welfare benefits, and younger/older women.

The project will draw on your insights to understand and suggest improvements for the communication of risk messages in pregnancy.

Please share this survey amongst your networks and across all of your social media platforms. We want to reach as many people as possible!

Who Is/Are WRISK?

The WRISK Project is led by the British Pregnancy Advisory Service (BPAS), in conjunction with Cardiff University, funded by Wellcome. Membership of the project oversight group includes representation from many different organisations involved with pregnancy, which includes Big Birthas.

And remember, when making decisions about your care – always use your BRAIN (acronym explanation here!)

WRISK recruitment advert - have you been pregnant in the last 5 years?